MARC JACOBS
Hutch Post
HUTCHINSON, Kan. — For the Crable family, daily life is a careful balance of routine, resilience and hope.
Anna and Jamar Crable say their son, Javion Crable, was diagnosed at birth with chronic kidney disease after complications were first detected during pregnancy.
Doctors initially were unsure whether Javion had functioning kidneys at all. Anna Crable recalled frequent trips to Wichita for monitoring and periods of hospitalization due to low amniotic fluid levels.
After birth, doctors confirmed Javion has two kidneys, though both are undersized — leading to ongoing health challenges, including high blood pressure and strict dietary and activity limitations.
“He’s medically okay, but he has to watch everything — what he eats, what he does, and his limitations,” Jamar Crable said.
Javion is currently classified in stage two of five stages of kidney disease. His parents say the primary goal is to preserve kidney function as long as possible and delay progression.
That effort requires constant vigilance.
Javion must stay hydrated, take daily medications and avoid high-contact sports to prevent injury to his kidneys. Even heat exposure during outdoor activities like soccer must be carefully managed with breaks, shade and monitoring.
Despite the challenges, the family works to maintain a sense of normalcy.
“We try to make life as normal as possible, just with modifications,” Anna Crable said.
The condition has also shaped the entire family dynamic. Javion’s siblings help remind him to take medication and drink water, while teachers and coaches remain actively involved in supporting his health needs.
The uncertainty of the future remains one of the most difficult aspects.
Doctors continue to monitor Javion every six months, but long-term outcomes are unclear. A kidney transplant could eventually be necessary, though his parents say advances in medicine provide hope for improved treatment options down the road.
In the meantime, the Crables are focused on raising awareness and offering support to other families facing similar diagnoses.
“When we first found out, we didn’t know anyone going through this,” Jamar Crable said. “If we had, it would have given us a lot more reassurance.”
That perspective is part of why the family has chosen to share their story — to provide hope and guidance to others navigating rare or unfamiliar medical conditions.
A recent milestone brought that message into the spotlight.
Through the Make-A-Wish program, Javion fulfilled a long-awaited dream of meeting WWE superstar Roman Reigns in New York City.
The meeting, held at Madison Square Garden before a live WWE event, lasted far longer than expected and left a lasting impression on both Javion and his family.
According to his parents, the connection between Javion and Reigns was immediate — rooted in shared experiences with ongoing medical challenges and perseverance.
The moment quickly gained attention online after Reigns later shared a message about the encounter, helping spread Javion’s story far beyond Hutchinson.
For the Crables, it was more than just a wish fulfilled.
It was a reminder of the importance of resilience — and the power of sharing their journey.
“We just want people to know,” Anna Crable said, “that even with challenges like this, life can still be full, meaningful and hopeful.”